Youngest Baby with Psoriasis? Mum Shares Charlie's Story

Uncategorized Aug 05, 2018

When it comes to psoriasis, there are often stories that make me shed a tear. A relatable comment about the emotional burden of the disease or the desperation someone feels in constantly dealing comments and stares. And when it comes to children suffering the itching and pain of this horrible skin condition, my heart absolutely goes out to them and their families. 

Little Charlie Nagy from Arizona is just 19 months old. Her mum Ashley shared her story online in the hope that it would educate their community on Charlie's skin condition. More than anything she's keen to stress it's not a skin disease that can be passed from person to person via skin to skin contact.  

Ashley, who works in property, explains: ‘Strangers can be very cruel about it, when we’ve taken her to the playground the parents of other children have dragged their kids away thinking she’s contagious.'

The couple call Charlie their ‘Unicorn Baby’ to reinforce how unique and special she is.  They work hard to combat the stares and cruel comments by kissing and cuddling her child in public.

'Most people move away, afraid they are going to catch whatever she has or move their kids away so she can't get too close or play with them. My response is normally to pick Charlie up and kiss her so that people can see she is not contagious and being near her isn't going to hurt anyone. A few people have made comments, some ladies said that I was a bad parent and couldn't believe I let her get so sunburned. Others have said they can't believe we have her out in public, but these are just very ignorant people so we ignore them.'

Charlie was just two months old when she had her first psoriasis flare-up. Doctors believe she is one of the youngest patients to have such a severe case.

Ashley explains: 'The rash on her stomach looked like tiny little dots and despite getting antibiotics and more it didn't seem to clear, only getting worse. We were told she was one of the youngest patients with psoriasis that the dermatologist had ever seen.'

I sent Ashley and Charlie a copy of my book Radiant. It's so lovely to see the family fully embracing the impact that diet can have on their little girls skin. You can follow Charlie's story on instagram @PsoriasisSunshine

 

 

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